6 year old child operated for Rs. 22 crores, know what was his disease?

A 6-year-old child became a victim of a strange disease. He suffered so much pain and a rare and serious genetic disease at such a young age. The child suffering from Sinar Atar disease suffers from muscle atrophy and weakness. He has undergone surgery and is expected to recover soon. This therapy for the treatment of the child is considered one of the most expensive therapies in the world. So know what this disease is.

Sinar Attar is treated with therapy. The cost of this treatment is Rs 22 crore. This therapy, approved by the US Food and Drug Administration (FDA) last year, is available in only a few countries, including the United Arab Emirates, and is one of the most expensive treatments in the world. Sinar's father said that his son's illness has devastated his house. After which people helped his family and asked them to go to Dubai for treatment.

'The disease was detected at the age of four'

In fact, when Sinar Atar was four years old, during a routine checkup it was discovered that Sinar was suffering from a serious disease called Duchenne Muscular Dystrophy or DMD. According to experts, due to this disease, Sinar started having difficulty walking. He could neither stand nor sit without support. A pediatrician with these symptoms checked the level of a muscle enzyme called creatinine kinase and sent a sample for genetic testing for DMD, which confirmed the disease.

This disease mostly affects boys

When specialists saw Sinar, his legs were extremely weak. His breathing and swallowing muscles were unaffected. This is the most common form of DMD muscular dystrophy. The disease causes the body to become skeletal. It also causes the heart muscles to become very weak. It is caused by changes in the dystrophin gene, which is needed for muscle strength. The disease begins in childhood, usually between two and three years of age, and mainly affects boys.

Gene therapy offers hope to patients

Gene therapy has shown a ray of hope in more than 400 patients worldwide. However, there are currently limited medical facilities worldwide that provide this treatment. With no treatment options available in Turkey, Sinar's parents turned to physiotherapy and swimming to help him develop his muscles, but these measures were not enough. After which the child was treated by giving gene therapy in Dubai.